You guys are praying for us, like really praying for us and we can feel it.
We are so humbled by your prayers.
Thursday was our anatomy scan for our twins and even though we get ultrasounds every week, this was the big one where the doctors look at all their fingers and all of their toes- which they have!
Our doctors are still giving us the diagnosis of limb body wall complex (or something similar), which no baby has survived but we go to each appointment with an open mind that anything can happen.
I intentionally shared about the babies on facebook the day before thinking maybe some friends from church would pray with us.
Woah, you guys. Woah. I never thought so many people would respond. And you all are still praying! To be honest I was nervous about telling our story on facebook because so many people have questioned why we would keep this pregnancy if the babies have a fatal diagnosis.
The answer is, God is in control and He is good all of the time. Tom came home from work Wednesday night and I said, “Tom, people are praying, like really praying.” His response was what did you expect? I guess I don’t know.
Tom was able to go with me to the anatomy scan and I will always be thankful to his boss for that.
Truthfully, most of the time we have no idea what we are looking at on ultrasound. But it is precious time with the babies. Funny thing: at one point our ultrasound said, “well no hands then”, because one baby’s hands were in a little fist and she couldn’t quite see them. I didn’t even flinch, just thought- add it to the list, we will pray for hands. Limb body wall complex means abnormal findings like no hands, no legs. But then she said, “today”. Meaning baby A has hands but she just couldn’t see them ‘today’. I guess it’s not funny at all but it was to me. Our babies have both arms, both hands, both legs and both feet- that is amazing.
Another funny thing that is maybe not funny at all- we never got to talk to the doctors about the results of our anatomy scan.
The scan took two and a half hours. But I had another appointment to go to. I am pretty sure they still think both babies have limb body wall complex or the equivalent as our maternal fetal medicine told us- no change, one baby has fluid in the abdomen but it’s not concerning and one baby may have a cleft palate.
Still not sure if they will live. Still not sure if they will die.
And that was it. The appointment took all day. But we got to see our babies, we had lunch together (shout out to flamers chicken, our go to at Johns Hopkins’ cafeteria) and best of all we felt God’s grace all around us. All around us.
As I was jogging down the hall trying to find a bathroom, I saw a precious girl standing on her IV being pushed by her mom down the hall. She looked so sick. I stopped right there and felt the weight of it. All of this. What parents will do for their children, what doctors will do to for their patients. And I started praying for her, I said God, give her all of the prayers we are getting, give her all of the healing we are asking for. Give them to her and her mom. We even haven’t met our babies yet but that mom has a little girl alive and she is suffering- it was hard but as God stopped me, He reminded me, there is enough for her and me and the babies and all of us. Oh Jesus, there is enough for all of us.
God is so good you guys. We are thankful for our doctors, for being able to go to Johns Hopkins and for getting to see our sweet babies so often. And the power prayer is real. We are feeling it and witnessing to the truth that God hears our prayers.
Our hearts are forever changed,
Tom and Emily